COLD DARK ROOM

[Bee62]

@CarolM

 

[Yvonne G]

Beautiful, as always, Sabine!

 

[Bee62]

Beautiful, as always, Sabine!

Thank you Yvonne !

 

[DE42]

Hello my lovely roommates.
Just popping in to say hello to everyone and wishing you all a wonderful Thursday.
I have some problems with the sores on my left leg coming from the shingles. It has gotten worse and I sometimes suffer pain, but I hope it will be better soon because I take some homöophatical meds.
That`s why I was reading but not posting. Sorry !
@DE42 Especially sorry for you Dan. I`ve read what you are going through. There are no words that are the right to say but I want to tell you like Yvonne already had: When you want to talk with us, we are here for you.

Sorry for you Carol too. I`ve missed your post when you`ve said that you want to hear "your" song.
But the next post it comes.

Thank you both Lyn and Lena for your kind words. @Lyn W & @Kristoff

Thank you very much. I am right now heading to Bristol Virginia to the cancer center so that I can get the first dosage of my Stelara. I am really hoping that it starts helping me quickly because if it don't I'm going to end up having to have a surgery anyway. The ulcer beside my stoma has continued to grow and now has a pocket going back under the skin that is approximately 2" wide and an inch long. That does not count the exposed part that was already there. I'm using a steroid and antibiotic cream on it but so far it has showed no signs of healing. Also where it is connected to my stoma there is not a whole lot they can do with the wound care. My leg is still swollen about twice the size of my other leg around the ankle and up the calf due to the erythema and something else they said I had down there. I am wake and get winded easily. It makes it hard to work or do what I need to do around home. Also I was told today that I have an electrical issue in my heart that is showing up on my EKGs. So I will most likely need to go to a Cardiologist to get that looked at. I wonder if it could just be from where I've had all of these issues for so long as well as the anemia. I'm hoping that if I can start getting the rest turned around whatever this electrical issue with my heart is will resolve itself.

In good news the feeling on my right side has come back to about 80 to 90% in my right side.

 

[Kristoff]

Wow. So much action going on in the CDR. I don't think I can handle it.

[emoji23] True. I was so exhausted I managed to fall asleep.

 

[Momof4]

Good Aftereve Everyone.

I hope all are having such a fantastic Thursday that they are too busy to come on here. It looks like rain a little later on. Yay. I can't wait for tomorrow as not only is it Friday but from Monday onwards I get to sleep a little later. I won't have to drop Jarrod off at school. Whoop whoop. Todays osteopathic visit went well. We discussed my treatment going forward and doc has persuaded me to try to go two weeks without coffee and no stimulants. To try and stay calm and relaxed so that I can see for myself how much all that stuff impedes my progress forward. So here goes most probably a week of living Hell for those around me while I go through withdrawal symptoms.

Sending you strength!!
Coffee would be a tough one!!

 

[Kristoff]

Good Aftereve Everyone.

I hope all are having such a fantastic Thursday that they are too busy to come on here. It looks like rain a little later on. Yay. I can't wait for tomorrow as not only is it Friday but from Monday onwards I get to sleep a little later. I won't have to drop Jarrod off at school. Whoop whoop. Todays osteopathic visit went well. We discussed my treatment going forward and doc has persuaded me to try to go two weeks without coffee and no stimulants. To try and stay calm and relaxed so that I can see for myself how much all that stuff impedes my progress forward. So here goes most probably a week of living Hell for those around me while I go through withdrawal symptoms.

Oh no... I’ll tell Montgomery to keep away from you - not to tempt you.
Good luck with recovery [emoji173]️

 

[Kristoff]

@CarolM

You have such a beautiful voice, Sabine!
Hope the meds work soon and your comfort is restored![emoji173]️

 

[Momof4]

Thank you very much. I am right now heading to Bristol Virginia to the cancer center so that I can get the first dosage of my Stelara. I am really hoping that it starts helping me quickly because if it don't I'm going to end up having to have a surgery anyway. The ulcer beside my stoma has continued to grow and now has a pocket going back under the skin that is approximately 2" wide and an inch long. That does not count the exposed part that was already there. I'm using a steroid and antibiotic cream on it but so far it has showed no signs of healing. Also where it is connected to my stoma there is not a whole lot they can do with the wound care. My leg is still swollen about twice the size of my other leg around the ankle and up the calf due to the erythema and something else they said I had down there. I am wake and get winded easily. It makes it hard to work or do what I need to do around home. Also I was told today that I have an electrical issue in my heart that is showing up on my EKGs. So I will most likely need to go to a Cardiologist to get that looked at. I wonder if it could just be from where I've had all of these issues for so long as well as the anemia. I'm hoping that if I can start getting the rest turned around whatever this electrical issue with my heart is will resolve itself.

In good news the feeling on my right side has come back to about 80 to 90% in my right side.

Big hugs Dan!!!!
We will always be here to listen!
Keep us updated.

 

[Momof4]

@CarolM

Love it!!
You aren’t even reading the words are you? I’m so impressed!!

 

[Kristoff]

Thank you very much. I am right now heading to Bristol Virginia to the cancer center so that I can get the first dosage of my Stelara. I am really hoping that it starts helping me quickly because if it don't I'm going to end up having to have a surgery anyway. The ulcer beside my stoma has continued to grow and now has a pocket going back under the skin that is approximately 2" wide and an inch long. That does not count the exposed part that was already there. I'm using a steroid and antibiotic cream on it but so far it has showed no signs of healing. Also where it is connected to my stoma there is not a whole lot they can do with the wound care. My leg is still swollen about twice the size of my other leg around the ankle and up the calf due to the erythema and something else they said I had down there. I am wake and get winded easily. It makes it hard to work or do what I need to do around home. Also I was told today that I have an electrical issue in my heart that is showing up on my EKGs. So I will most likely need to go to a Cardiologist to get that looked at. I wonder if it could just be from where I've had all of these issues for so long as well as the anemia. I'm hoping that if I can start getting the rest turned around whatever this electrical issue with my heart is will resolve itself.

In good news the feeling on my right side has come back to about 80 to 90% in my right side.

How long before those meds usually start to take effect?
Hope you start on the way to recovery soon. [emoji173]️

 

[JoesMum]

Good Aftereve Everyone.

I hope all are having such a fantastic Thursday that they are too busy to come on here. It looks like rain a little later on. Yay. I can't wait for tomorrow as not only is it Friday but from Monday onwards I get to sleep a little later. I won't have to drop Jarrod off at school. Whoop whoop. Todays osteopathic visit went well. We discussed my treatment going forward and doc has persuaded me to try to go two weeks without coffee and no stimulants. To try and stay calm and relaxed so that I can see for myself how much all that stuff impedes my progress forward. So here goes most probably a week of living Hell for those around me while I go through withdrawal symptoms.

Good luck with that!

 

[JoesMum]

Hello my lovely roommates.
Just popping in to say hello to everyone and wishing you all a wonderful Thursday.
I have some problems with the sores on my left leg coming from the shingles. It has gotten worse and I sometimes suffer pain, but I hope it will be better soon because I take some homöophatical meds.
That`s why I was reading but not posting. Sorry !
@DE42 Especially sorry for you Dan. I`ve read what you are going through. There are no words that are the right to say but I want to tell you like Yvonne already had: When you want to talk with us, we are here for you.

Sorry for you Carol too. I`ve missed your post when you`ve said that you want to hear "your" song.
But the next post it comes.

Thank you both Lyn and Lena for your kind words. @Lyn W & @Kristoff

Sorry you’re not feeling too great Sabine. I hope it subsides quickly.

 

[rjamesbeasley]

Hello!

 

[rjamesbeasley]

You know, you guys quote so much here...

 

[rjamesbeasley]

Has anyone seen tidgy's dad recently?

 

[Bee62]

Thank you very much. I am right now heading to Bristol Virginia to the cancer center so that I can get the first dosage of my Stelara. I am really hoping that it starts helping me quickly because if it don't I'm going to end up having to have a surgery anyway. The ulcer beside my stoma has continued to grow and now has a pocket going back under the skin that is approximately 2" wide and an inch long. That does not count the exposed part that was already there. I'm using a steroid and antibiotic cream on it but so far it has showed no signs of healing. Also where it is connected to my stoma there is not a whole lot they can do with the wound care. My leg is still swollen about twice the size of my other leg around the ankle and up the calf due to the erythema and something else they said I had down there. I am wake and get winded easily. It makes it hard to work or do what I need to do around home. Also I was told today that I have an electrical issue in my heart that is showing up on my EKGs. So I will most likely need to go to a Cardiologist to get that looked at. I wonder if it could just be from where I've had all of these issues for so long as well as the anemia. I'm hoping that if I can start getting the rest turned around whatever this electrical issue with my heart is will resolve itself.

In good news the feeling on my right side has come back to about 80 to 90% in my right side.

Hello Dan. I just want to say / express with all my heart that I am wishing you all the best for your health. You have the best doctors and meds in America and I wish that they will help you.
Let me please give you a lot of electronic hugs.

 

[Bee62]

Love it!!
You aren’t even reading the words are you? I’m so impressed!!

Thank you Kathy ! No, I don` have to read the words. I know the lyrics of all my favorite songs by heart

 

[DE42]

That I really don't know but it should be quickly I'd theink. It in an amune suppressant.

How long before those meds usually start to take effect?
Hope you start on the way to recovery soon. [emoji173]️

 

[DE42]

About to get the infusion.