Pretend chat 2

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CtTortoiseMom

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Hi Chatters,

I have been keeping up with chat and have been looking at the beautiful torts every day. I have been unable to post until today because I actually currently despise people for being healthy. It seems to be a passing phase and I know its unfair.

I got another shock regarding one of the kids health and it is making me feel down. Rand had an EKG this past Friday because his pediatrician heard a swooshing sound at a follow up lung visit that was just to make sure his latest battle with pnuemonia was over. So we had an EKG which was to rule anything terrible out because his echocardiogram was not scheduled until Aug. 7th.
Well, the EKG was abnormal and indicated Right Ventrical Enlargement. The cardiology team and his other specialist think that based on his history with chronic pnuemonia and other issues they are pretty sure he has an Ateial Septal Defect which is a hole in his heart. So his EKG was sent to 4 heart surgeons that are affiliated with Boston Children's hospital which is the number 1 hospital in the US for pediatric Cardiology and open heart surgery and that is where we are heading tomorrow for an echocardiogram and consult.
So that's it.


Rand at his EKG
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Cowboy_Ken

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Dang it all, Mrs. C. I'm sorry about all that. I would find the waiting not knowing part the worst. Too much imagination can go on.
 

CtTortoiseMom

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Cowboy_Ken said:
Dang it all, Mrs. C. I'm sorry about all that. I would find the waiting not knowing part the worst. Too much imagination can go on.

Thanks Ken, yep that is the worst part. I also keep thinking back to see if there were any red flags that I missed and what kills me is I think there were a few.


littlestella said:
CT, I am so sorry. We will all send positive thoughts and prayers your way.

Thank you.
 

Kerryann

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Re: RE: Pretend chat 2

CtTortoiseMom said:
Hi Chatters,

I have been keeping up with chat and have been looking at the beautiful torts every day. I have been unable to post until today because I actually currently despise people for being healthy. It seems to be a passing phase and I know its unfair.

I got another shock regarding one of the kids health and it is making me feel down. Rand had an EKG this past Friday because his pediatrician heard a swooshing sound at a follow up lung visit that was just to make sure his latest battle with pnuemonia was over. So we had an EKG which was to rule anything terrible out because his echocardiogram was not scheduled until Aug. 7th.
Well, the EKG was abnormal and indicated Right Ventrical Enlargement. The cardiology team and his other specialist think that based on his history with chronic pnuemonia and other issues they are pretty sure he has an Ateial Septal Defect which is a hole in his heart. So his EKG was sent to 4 heart surgeons that are affiliated with Boston Children's hospital which is the number 1 hospital in the US for pediatric Cardiology and open heart surgery and that is where we are heading tomorrow for an echocardiogram and consult.
So that's it.


Rand at his EKG




I'm so sorry Erin, I have been keeping you in my prayers. If you ever need a shoulder or an ear you have friends here. I can't even imagine the worry.
 

Jacqui

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CtTortoiseMom said:
Thanks Ken, yep that is the worst part. I also keep thinking back to see if there were any red flags that I missed and what kills me is I think there were a few.

Erin just stop that right now! It is so easy to look back and "see" things (real or imaginary) and make them into "signs" that you should have seen (especially "if you were a good Mom"). You know better then that, both in your mind and in your heart. Stop looking back and beating yourself up over things that you can no longer do anything about. Looking back will not change the here and now. If you have to worry (and with you being the type of person you are not to mention being a great Mom, your gonna worry a huge amount) worry about the future. :p Even the future is pretty much out of your hands for now. You have given Rand great care and lots of love and support. He has self worth and confidence from you. Those are the things that he will be needing in his future. Cut yourself a break. I know his future surgeries and things look serious and they are, but today's medicine is simply amazing. He will come through this... and so will you. *hugs*

If you need to rant, please feel free to do so in this thread or PM us, if that works better. If it would help come on over, I have some old glass plates you could throw and break. Something about shattering things can be very healthy. :D
 

CtTortoiseMom

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Kerryann said:
CtTortoiseMom said:
Hi Chatters,

I have been keeping up with chat and have been looking at the beautiful torts every day. I have been unable to post until today because I actually currently despise people for being healthy. It seems to be a passing phase and I know its unfair.

I got another shock regarding one of the kids health and it is making me feel down. Rand had an EKG this past Friday because his pediatrician heard a swooshing sound at a follow up lung visit that was just to make sure his latest battle with pnuemonia was over. So we had an EKG which was to rule anything terrible out because his echocardiogram was not scheduled until Aug. 7th.
Well, the EKG was abnormal and indicated Right Ventrical Enlargement. The cardiology team and his other specialist think that based on his history with chronic pnuemonia and other issues they are pretty sure he has an Ateial Septal Defect which is a hole in his heart. So his EKG was sent to 4 heart surgeons that are affiliated with Boston Children's hospital which is the number 1 hospital in the US for pediatric Cardiology and open heart surgery and that is where we are heading tomorrow for an echocardiogram and consult.
So that's it.


Rand at his EKG




I'm so sorry Erin, I have been keeping you in my prayers. If you ever need a shoulder or an ear you have friends here. I can't even imagine the worry.


Thank you :)


Jacqui said:
CtTortoiseMom said:
Thanks Ken, yep that is the worst part. I also keep thinking back to see if there were any red flags that I missed and what kills me is I think there were a few.

Erin just stop that right now! It is so easy to look back and "see" things (real or imaginary) and make them into "signs" that you should have seen (especially "if you were a good Mom"). You know better then that, both in your mind and in your heart. Stop looking back and beating yourself up over things that you can no longer do anything about. Looking back will not change the here and now. If you have to worry (and with you being the type of person you are not to mention being a great Mom, your gonna worry a huge amount) worry about the future. :p Even the future is pretty much out of your hands for now. You have given Rand great care and lots of love and support. He has self worth and confidence from you. Those are the things that he will be needing in his future. Cut yourself a break. I know his future surgeries and things look serious and they are, but today's medicine is simply amazing. He will come through this... and so will you. *hugs*

If you need to rant, please feel free to do so in this thread or PM us, if that works better. If it would help come on over, I have some old glass plates you could throw and break. Something about shattering things can be very healthy. :D
Thank's so much Jacqui. You are so right. I really would love to smash something. I wish you were all my neighbors!
 

sibi

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Erin, I just read this. I'm so sorry to hear of your distress. I would feel the same way; it's perfectly normal to feel like you do. I agree with the doctors that Rand's right side of his heart is enlarged as a result of his chronic lung infections. My mom had pulmonary fibrosis which caused her heart to enlarge on the right side. It only means that the heart has to work harder because of the lack of oxygen from the lung problem. If they can get his lungs to function better, his heart will be fine. Now, the mummer is something many kids have and learn to live with. Of course, the lungs causes the problem to be more serious, but with the proper treatments, he can live a long, healthy life. We, as mothers, always worry no matter how reassuring people's words are. Buy, just let's see what the doctors say after they've seen him and run whatever tests they recommend. It makes no sense to worry so much that you can't be positive with the person who needs you most right now. Just know that we're here for you and I will be praying for your family. Keep us posted about Rand's progress please. Hugs and kisses to you and Rand.
 

RosieRedfoot

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Sending my best thoughts and wishes to you and your son. Hindsight is 20/20 but he's getting the care he needs now before it could get any worse. You're a good mom so don't beat yourself up over it.
 

Cowboy_Ken

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CtTortoiseMom said:
Rand at his EKG

Mrs. C. This is a perfect example for the statement: “God only gives us what we can handle, apparently God thinks you're a bad ***!"
 

sibi

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Cowboy, maybe I'm dumb, but could you explain what you meant with your comment "apparently God thinks you're a bad ***!"?

quote='Cowboy_Ken' pid='702419' dateline='1373921898']
CtTortoiseMom said:
Rand at his EKG

Mrs. C. This is a perfect example for the statement: “God only gives us what we can handle, apparently God thinks you're a bad ***!"
[/quote]
 

Cowboy_Ken

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sibi said:
Cowboy, maybe I'm dumb, but could you explain what you meant with your comment "apparently God thinks you're a bad ***!"?

God would appear to be giving Mrs.C. alot to handle.
 

RosieRedfoot

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Crazy mushrooms growing out of the pot my hibiscus is in.
 
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sibi

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What I'm not understanding is what does "bad ***" mean in the context of things?

Cowboy_Ken said:
sibi said:
Cowboy, maybe I'm dumb, but could you explain what you meant with your comment "apparently God thinks you're a bad ***!"?

God would appear to be giving Mrs.C. alot to handle.
 
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